The Australian invention empowering sick children through tough times
Kanebridge News
Share Button

The Australian invention empowering sick children through tough times

This specially designed medical garment draws on the ‘Batman effect’ to give young patients the strength to persevere

By Robyn Willis
Fri, Apr 14, 2023 8:00amGrey Clock 3 min

It might not seem like much, being able to choose what you wear. But for children being treated for life threatening conditions and illnesses, it’s more agency than they’re used to.

Regularly prodded with needles, drips and assessed by monitors, as well as being scanned, x-rayed and more, they often have little control over what’s happening – or being done to – their own bodies during hospital stays. It’s often a frightening, bewildering experience.

And it’s not just the sick children who feel powerless.

When tradie Jason Sotiris’s daughter was diagnosed with a life threatening illness as a young child, he was at a loss to help give her the strength and support she needed to endure. 

Creating a hospital friendly range of clothing, known as Supertees, was the result. Designed to be MRI and PET scan friendly, the hospital grade garments provide medical staff with easy side and shoulder access to the patient while still looking like a standard t-shirt. 

Starting from scratch and with no experience in the clothing industry, Sotiris trialled a number of designs and fastening options before settling on the end product.

But key to their success is the Marvel superhero characters that are printed on them.

Sotiris said the garments are designed to help put young kids in the best frame of mind as possible as they face the toughest times of their lives.

“These children have to face these things and there’s not a lot of choice for them,” he said. “We want them to be able to choose whatever makes them feel stronger.”

Available free to families of kids facing the toughest health battles, the Supertees are in high demand. 

“What you wear matters, what you wear can represent you in a certain way and hospital gowns are a symbol of being unwell,” Sotiris said. “It’s something given to those who are unwell. 

“We wanted to create something that someone would wear and make them stand out in a special way. How good would it be that something is so cool and fun that it makes healthy kids just a little bit jealous, because it’s usually the other way round.”

The Supertee is aimed at children from birth through to early teens. It looks like a standard t-shirt but is MRI and PET scan friendly, with side and shoulder fasteners for easy access.

But the benefits of the Supertee go way beyond having a desirable superhero costume.

Sotiris pointed to a joint study by researchers at University of Pennsylvania, University of Minnesota, University of Michigan in the US called The Batman Effect: Improving Perseverance in Young Children.

The study found that when four and six year olds ‘impersonated’ an ‘exemplar other’ like a superhero character, they showed  much higher levels of perseverance when faced with challenging tasks. The findings of the study supported what Sotiris already suspected.

“So it’s not the child going through the MRI, it’s Wonder Woman,” he said. “How would she act in this situation? We’re trying to use the power of imaginative play.”

While Disney, who has the rights to the Marvel characters’ artwork, has waived licensing fees for the Supertees, the charity is not receiving further monetary support. 

Sotiris is seeking high wealth individuals and corporate partners to help him achieve his aim of supplying Supertees to 10,000 seriously ill children around Australia. 

“I don’t want parents to have to pay for them – they are going through enough,” he said. “Parents are often working less and navigating that with their employer, or they may have left their job to care for their sick child. It would be great to offer them something to make things a little bit easier.”

He is in talks with other community-minded groups such as the NRL and the NSW Police (to create a Tactical Cancer Fighting Unit Supertee) to extend the range and give more kids the mental boost they need.

Just as it is for any parent who has watched their child go through this experience, it’s still a very personal quest for Sotiris. His daughter, now 11 years old, finished treatment some time ago and her last scan earlier this year was clear. Giving back to other parents and children has helped him process his own difficult memories of that time.

“In 2018 I held my daughter’s hand in one hand and a Supertee in the other and I went back to the hospital,” he said. “I started replacing the memories I had of her treatment with these wonderful memories of helping these kids with the Supertee.”

You can support the Supertee initiative here.

 



MOST POPULAR
11 ACRES ROAD, KELLYVILLE, NSW

This stylish family home combines a classic palette and finishes with a flexible floorplan

35 North Street Windsor

Just 55 minutes from Sydney, make this your creative getaway located in the majestic Hawkesbury region.

Related Stories
Lifestyle
The Uglification of Everything
By Peggy Noonan 26/04/2024
Money
Personal Wardrobe of the Iconic Late Fashion Designer Vivienne Westwood Goes up for Auction
By CASEY FARMER 25/04/2024
Money
Rediscovered John Lennon Guitar Heads to Auction, Expected to Set Records
By Eric Grossman 24/04/2024
The Uglification of Everything

Artistic culture has taken a repulsive turn. It speaks of a society that hates itself, and hates life.

By Peggy Noonan
Fri, Apr 26, 2024 5 min

I wish to protest the current ugliness. I see it as a continuing trend, “the uglification of everything.” It is coming out of our culture with picked-up speed, and from many media silos, and I don’t like it.

You remember the 1999 movie “The Talented Mr. Ripley,” from the Patricia Highsmith novel. It was fabulous—mysteries, murders, a sociopath scheming his way among high-class expats on the Italian Riviera. The laid-back glamour of Jude Law, the Grace Kelly-ness of Gwyneth Paltrow, who looks like a Vogue magazine cover decided to take a stroll through the streets of 1950s Venice, the truly brilliant acting of Matt Damon, who is so well-liked by audiences I’m not sure we notice anymore what a great actor he is. The director, Anthony Minghella, deliberately showed you pretty shiny things while taking you on a journey to a heart of darkness.

There’s a new version, a streaming series from Netflix, called “Ripley.” I turned to it eagerly and watched with puzzlement. It is unrelievedly ugly. Grimy, gloomy, grim. Tom Ripley is now charmless, a pale and watchful slug slithering through ancient rooms. He isn’t bright, eager, endearing, only predatory. No one would want to know him! Which makes the story make no sense. Again, Ripley is a sociopath, but few could tell because he seemed so sweet and easy. In the original movie, Philip Seymour Hoffman has an unforgettable turn as a jazz-loving, prep-schooled, in-crowd snob. In this version that character is mirthless, genderless, hidden. No one would want to know him either. Marge, the Paltrow role in the movie, is ponderous and plain, like a lost 1970s hippie, which undercuts a small part of the tragedy: Why is the lovely woman so in love with a careless idler who loves no one?

The ugliness seemed a deliberate artistic decision, as did the air of constant menace, as if we all know life is never nice.

I go to the No. 1 program on Netflix this week, “Baby Reindeer.” People speak highly of it. It’s about a stalker and is based on a true story, but she’s stalking a comic so this might be fun. Oh dear, no. It is again unrelievedly bleak. Life is low, plain and homely. No one is ever nice or kind; all human conversation is opaque and halting; work colleagues are cruel and loud. Everyone is emotionally incapable and dumb. No one laughs except for the morbidly obese stalker, who cackles madly. The only attractive person is the transgender girlfriend, who has a pretty smile and smiles a lot, but cries a lot too and is vengeful.

Good drama always makes you think. I thought: Do I want to continue living?

I go to the Daily Mail website, once my guilty pleasure. High jinks of the rich and famous, randy royals, fast cars and movie stars, models and rock stars caught in the drug bust. It was great! But it seems to have taken a turn and is more about crime, grime, human sadness and degradation—child abuse, mothers drowning their babies, “Man murders family, self.” It is less a portal into life’s mindless, undeserved beauty, than a testimony to its horrors.

I go to the new “Cabaret.” Who doesn’t love “Cabaret”? It is dark, witty, painful, glamorous. The music and lyrics have stood the test of time. The story’s backdrop: The soft decadence of Weimar is being replaced by the hard decadence of Nazism.

It is Kander and Ebb’s masterpiece, revived again and again. And this revival is hideous. It is ugly, bizarre, inartistic, fundamentally stupid. Also obscene but in a purposeless way, without meaning.

I had the distinct feeling the producers take their audience to be distracted dopamine addicts with fractured attention spans and no ability to follow a story. They also seemed to have no faith in the story itself, so they went with endless pyrotechnics. This is “Cabaret” for the empty-headed. Everyone screams. The songs are slowed, because you might need a moment to take it in. Almost everyone on stage is weirdly hunched, like a gargoyle, everyone overacts, and all of it is without art.

On the way in, staffers put stickers on the cameras of your phone, “to protect our intellectual property,” as one said.

It isn’t an easy job to make the widely admired Eddie Redmayne unappealing, but by God they did it. As he’s a producer I guess he did it, too. He takes the stage as the Emcee in a purple leather skirt with a small green cone on his head and appears further on as a clown with a machine gun and a weird goth devil. It is all so childish, so plonkingly empty.

Here is something sad about modern artists: They are held back by a lack of limits.

Bob Fosse, the director of the classic 1972 movie version, got to push against society’s limits and Broadway’s and Hollywood’s prohibitions. He pushed hard against what was pushing him, which caused friction; in the heat of that came art. Directors and writers now have nothing to push against because there are no rules or cultural prohibitions, so there’s no friction, everything is left cold, and the art turns in on itself and becomes merely weird.

Fosse famously loved women. No one loves women in this show. When we meet Sally Bowles, in the kind of dress a little girl might put on a doll, with heavy leather boots and harsh, garish makeup, the character doesn’t flirt, doesn’t seduce or charm. She barks and screams, angrily.

Really it is harrowing. At one point Mr. Redmayne dances with a toilet plunger, and a loaf of Italian bread is inserted and removed from his anal cavity. I mentioned this to my friend, who asked if I saw the dancer in the corner masturbating with a copy of what appeared to be “Mein Kampf.”

That’s what I call intellectual property!

In previous iterations the Kit Kat Club was a hypocrisy-free zone, a place of no boundaries, until the bad guys came and it wasn’t. I’m sure the director and producers met in the planning stage and used words like “breakthrough” and “a ‘Cabaret’ for today,” and “we don’t hide the coming cruelty.” But they do hide it by making everything, beginning to end, lifeless and grotesque. No innocence is traduced because no innocence exists.

How could a show be so frantic and outlandish and still be so tedious? It’s almost an achievement.

And for all that there is something smug about it, as if they’re looking down from some great, unearned height.

I left thinking, as I often do now on seeing something made ugly: This is what purgatory is going to be like. And then, no, this is what hell is going to be like—the cackling stalker, the pale sociopath, Eddie Redmayne dancing with a plunger.

Why does it all bother me?

Because even though it isn’t new, uglification is rising and spreading as an artistic attitude, and it can’t be good for us. Because it speaks of self-hatred, and a society that hates itself, and hates life, won’t last. Because it gives those who are young nothing to love and feel soft about. Because we need beauty to keep our morale up.

Because life isn’t merde, in spite of what our entertainment geniuses say.

 

MOST POPULAR
11 ACRES ROAD, KELLYVILLE, NSW

This stylish family home combines a classic palette and finishes with a flexible floorplan

Consumers are going to gravitate toward applications powered by the buzzy new technology, analyst Michael Wolf predicts

Related Stories
Lifestyle
Good News: You Don’t Have to Sleep With Your Spouse
By ELIZABETH BERNSTEIN 18/12/2023
Money
Investors Have Cooled on Hydrogen. A Second Wave Is Coming.
By PATTI DOMM 12/04/2024
Money
Everyone’s Over ‘Quiet Luxury.’ Here’s What’s Next
By RORY SATRAN 27/02/2024
0
    Your Cart
    Your cart is emptyReturn to Shop